Today we had an important appointment with Braydin’s Pediatric Behavioral Specialist. These visits are never easy, but they are always necessary—and honestly, they help bring a little more clarity to this wild journey we’re navigating.
We spent time talking about everything that’s been going on in our lives lately. It’s a lot. Life doesn’t really slow down, and when you’re parenting a high-needs child like Braydin, the challenges stack up faster than you can process them.
Right now, we’re doing our best to manage Braydin’s current medication, which helps—but only for a short window. We’ve noticed that the effectiveness wears off around the six-hour mark. So, we’ve been trying different strategies to stretch it out, trying to keep him regulated for as much of the day as possible without overwhelming his little system.
Another big topic we covered today was Braydin’s increasing paranoia. He’s been describing things that concern us—things that might be hallucinations, or they might be products of his incredibly vivid imagination. The hardest part is that he’s not always able to tell the difference between what’s real and what’s not. It’s heartbreaking, and confusing, and it makes us feel helpless at times.
His specialist is now considering the possibility of adding an additional medication to help with these episodes. It’s not a decision we’re taking lightly. Every new medication brings new questions, new side effects, and a whole new round of trial and error. But if it means Braydin can feel safer and more grounded, it’s something we’re open to exploring.
Every step with Braydin is a learning process. Some days feel like we’re moving forward, others feel like we’re barely treading water—but we keep showing up. We keep fighting for him. And we keep hoping for better days ahead.
Thanks for being here with us. Sharing this journey helps lighten the weight a little, and if you’re on a similar path—we see you too.
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